Saturday 22 June 2013

Blog 15 : June 2013

June 2013 has been a strange month. Many milestones have passed in June, obviously most significantly it was Mia's birthday and anniversary. Very differing occasions as the names suggest and the differing emotions that each day brought could not have been further apart. 

Those that have not suffered this sense of loss will not understand this, but the birthday of a lost child is just as special as the birthday of our other children, the ones that are here with us every day, the ones  we get to organise parties for and take out for their birthdays. Just as our other children, a lot of planning goes into the birthday. Granted, there are big differences with the preparations, and celebrations but still, it's your child's birthday. Instead of looking for presents for our little girl to play with on her 1st birthday, we were searching for nice things to display in her garden, things that symbolise our love for our angel in heaven. There were many visitors to Mia's Garden, all bringing different gifts, all beautiful in their own way, each one a reflection of the bearers thoughts of Mia. There were flowers, teddys, ornaments, hand crafted wooden keepsakes, balloons,  poems, all very personal of their feelings to Mia. Mia's birthday was a really beautiful day. Little Miss Sunshine had done her job, the hottest week of the year was delivered for the birthday celebrations, she knew that we wanted to have a picnic with her. So after visiting Mia in the morning to give her all the presents, just as we do with Kyran, he gets his presents first thing in the morning, we visited again at lunchtime to have our picnic with the birthday girl. A happy day with lots of happy thoughts drew peacefully to a close. We never knew that the birthday of a beautiful baby girl, now an angel could be so beautiful. 

The following day, Mia's anniversary, was quite different. The mood had changed significantly, there was an air of inevitability around the place. We had planned a balloon release at 14:55, which symbolised the end of Mia's short 31 hours and 21 minutes with us. The sad thing about the anniversary day was that it was like a countdown, counting down to the moment that no one wanted to arrive. We released the balloons and 12 months of emotion came flooding out, it was almost as though the clocks had been turned back a year, the feelings were so raw.

Another significant day passed on the 18th of the month, which was when we buried our princess. Although I tried not to think about it too much, grief had other ideas for me. Leading up to lunchtime, all I could think of was carrying Mia's small white coffin into the cemetery chapel, no matter how hard I tried to block it out of my mind the visions were still there. Then, at 12pm, the time of Mia's service, Rule the World by Take That came on the radio. Now this isn't one of Mia's songs, but still it is one of those that remind us of her. Some of the words just fit perfectly for Mia "You light, the skies, up above me, a star, so bright, you blind me", after all she is the brightest star in the sky. And "Don't close your eyes, don't fade away, don't fade away" symbolises the hope for a miracle that we felt while she was with us. Sat in my office that day, I believe that song was a message from Mia.

June was also a significant month where we decided that the time was right to start giving something back. The idea of fund raising was born the month before but it really progressed in June. We visited the Liverpool Women's Hospital to meet with the charitable fund raiser there and made a commitment to support the neonatal unit in the future. We also have a meeting planned with the CEO of the hospital at the beginning of July. It's this second meeting, with Kathy Thompson, the CEO of the hospital that makes us want to help the hospital even more. Kathy doesn't need to meet us, she is a very busy lady doing great work for an amazing hospital, but she is making time in her busy schedule to meet with us. This only strengthens a statement I made to Lisa, the charitable fund raiser, that " The Liverpool Women's Hospital is like going private, but on the NHS ". The extra mile that all the staff go is a credit to the hospital. 

Fund raising was always an idea, but in June I was inspired. I was inspired to do this properly. If I'm making a commitment to the hospital, then I want to make it official. I'm currently organising a logo, a website and I'm going to meet someone next week for advice in setting up a non profit organisation to handle the fund raising. It is the person that I am meeting next week that has been the inspiration behind making sure this mission is done properly, his name is David Pope. He set up an organisation in memory of his granddaughter and has just completed an amazing challenge and raised over £3500 for his organisations chosen charities. 9 months ago, David decided to enter the Deloitte Ride Across Britain, and committed to cycle from John O Groats to Lands End, despite not being a regular cyclist. He completed this only last week, and I followed his progress daily, each day coming more admiration and inspiration. You can read his story, blogs, and activities at the below address, links to the twitter and Facebook pages are also well worth following.


It's the above account that echoes the sentiments of another regular blogger on the Internet, known as Fathers Grief. He talks about the network of people out there that are all united by the unwanted bond. These people, most of whom we have never met, or ever likely to meet provide a lot of comfort, and more importantly an understanding of the situation we are in, after all, those that have not lived through baby loss can never understand just how difficult it really is. You can read all of Fathers Grief's posts, inspired by Ethan at the address below, and again, the links to the twitter and Facebook feeds are worth following.


June has been a funny old month. So many emotions have been experienced once again, but I have found a new focus in my life, giving something back and helping others in similar positions. One thing I did learn in June though is that just because a year has passed, doesn't mean that the grief is any different. Unfortunately, there is no 1 year switch that turns the grief off, it's still there, as strong as ever. What is happening though, is that I'm getting stronger, and as long as that continues, I guess I can focus my energies into getting this charity ball rolling.

Friday 14 June 2013

Blog 14 : Fathers Day

Fathers Day 2013 is my second since I lost my princess, Mia Rose. Last year, Fathers Day was only 12 days after we said goodbye to Mia and the day before we laid her to rest so understandably it was not a time for celebration. I have never forgotten that I am Mia's daddy but it can sometimes be difficult when people see us with Kyran, our 3 year old and ask if we're having any more children, or if we've just got the one. The people that ask these questions don't know my situation but in the months after losing Mia, it was too easy and convenient for me to confirm that I've only got 1 child. This however, is so wrong and the guilt felt after telling someone this is unbearable. I'm now in a completely different frame of mind from those early days and can now confidently state that I have 2 children, one of which was too special for this earth. The biggest thing is now, I can say this (most of the time) without crying.  

Fathers Day has always been one of my favourite days of the year, certainly ranked higher than my birthday. We have never really splashed out on Fathers Day, just little things like cups, glasses, key rings etc that say "To My Daddy" or "Worlds Greatest Daddy" on them is all we have ever done. The big difference this year is that these little gifts will be from both of my children, the 2 children that I am so proud of. Kyran, my 3 year old boy makes me proud on a daily basis, whether that be from his spelling and writing or from him coming out of his shy little shell on holiday and suddenly appearing on the stage in front of hundreds of people. Mia made me proud the way she fought for those 31 hours that she was with us. The doctor was surprised she made it through the night and it's that fighting spirit that she had that she has instilled in her mummy and daddy. There is no way that we could have got through this past 12 months without Mia's fighting spirit, and that is why I can now openly say that I am so proud to be Mia's Daddy. 

What I like about Fathers Day is the togetherness and family spirit. It's traditionally a day spent together, our own little family. The toughest thing about these special days is that our little princess isn't with us. Instead of her being here to join in, we have to go to her garden, the only place that we genuinely feel close to her, to involve her in our day. Children should visit their dads on Fathers Day, shouldn't really be the other way round.

Mia may not be here with me like Kyran is, but does that mean that I'm not her daddy? Of course it doesn't, I'm every bit Mia's daddy as I am Kyran's. Mia is included in everything we do, on a daily basis. Mummy and I talk about her all the time, and Kyran is involved in that. He knows who his little sister is and he talks about her openly at will. 

No one can ever take away from me that I am Mia's daddy, and I'm so glad that I can finally say to the world that I am proud of my little girl. I will always talk about Mia, she is just as much a part of me as every other part of my life. Anyone that can't handle that should probably give me a wide berth from now on. I will never forget my princess and anybody that thinks any differently is not worth having around.

I'm looking forward to Fathers Day, it will be a nice day as it always is, but this and every one after this will always have that missing piece, Mia Rose.